Wife, Mother, National Spokesperson for NORD®,
elected town official, and Western Michigan University Alumni, Stephanie believes that life is best lived in service to others.    Read more...

It wasn’t long after Donnie was born that he was diagnosed with RTS.  We were at a teaching hospital and the novelty of a rare disease birth attracted much attention.  Our one attending intern soon turned into fifteen, each one respectful but curious ...                  Read more...             

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